1 Month and 28 days in!
It’s Autumn here in Melbourne but I think I am feeling the chill a lot more! I’m constantly shivering. Methinks this is something to do with the oozing. Or the sweating. These days have been a blur of crazy symptoms. And laundry. Never done so much laundry in my life. I also started getting really swollen lips, it looked like I had sausages for lips!
My daily routine is pretty slow paced. Night time is the worse. I’ll be in bed and will spend roughly 3 or 4 hours trying to get comfortable enough to sleep. Most nights I sleep at an elevated angle. Lying horizontally makes my neck ooze and sting so badly. I will get a nap in around 5am for an hour then lie there for a bit trying very very hard to not scratch. Then around 6am ish I will nap for another 3 or 4 hours. The bit I hate the most is peeling myself out of bed. I feel so gross! For some reason I always think of Hansel and Gretel. When Hansel leaves the trail of breadcrumbs behind him in the story. If it were me, no problem. Just follow the trail of skin flakes. I’ll never get lost again!
I usually jump into the shower and the first minute is painful. The burn eventually subsides and I can just enjoy whatever comfort I can get. Sometimes I’ll be so sleep deprived I’ll lean my head against the shower wall and doze off. Then I have to cheer myself on to get out. I’ve been doing MW for a fair while now so it’s not so bad letting myself air dry. I know I will be super dry and tight but at least I know what to expect. I’ve had long hair my whole life but recently I cut my hair short to deal with TSW. Sigh. I can’t wait until I can grow it back!
The rest of my day is spent hobbling around the house, eating and doing laundry and other chores as best as I can. I shuffle around the house with my arms crossed because my joint are too sore to be stretched out. I’m very lucky because my family are quite supportive so I don’t have to much to stress about. Just recently I have even been letting some close friends come around to visit. Previously I didn’t want to see anyone! But they bullied me into seeing them haha. My bf has also been very very supportive. Even changing my bedsheets for me and buying me my favourite treats. I know it can’t be easy for him to see me suffer and I know some days I’m an absolute mess to deal with. I consider myself a very lucky girl! I’m trying to stay as positive as possible and not fall into depression. So I remind myself how lucky I am as much as possible. I think it’s important for anyone going through TSW to have support. Doing it alone is too cruel!
Ok onto progress pictures!
My arms at the moment are the easiest to deal with. I have started to keep my elbow at 90° at all times so the joint is healing nicely.
My legs and belly are in the middle of a flare. They just bleed and weep through clothes.
My whole belly is covered at this point. I think my back is relatively ok. Also wearing a bra sucks. It sucks a lot.
And lastly my face!! I think the worst out of my whole body is my neck. I find it so hard to just let it heal. And it just stings so much! Ahh!! I’m looking forward to that part healing the most!
oh and just for reference… one day’s worth of shedding… just from my arms!!!
How is my body even doing this!?! It creeps me out!!