Day 455

1 year, 3 months and 1 day in!

Hello all! Yes I am still alive and no I have not given up on my blog! 🙂 I deliberately left a long gap between updates this time for a good reason. I had that dreaded anniversary flare!! I’m still going through it but I amassed a set of time lapse photos to see how the flare progressed. I have to say this one is pretty nasty and it is not a pretty sight. I was feeling so shitty I really wasn’t in the mood to take photos but I did it anyway. I knew I would regret it if I didn’t. SIGHHH

This time around I did try a few new things. The bentonite clay was one of them. I experienced really heavy ooze this time around and I thought it would help but it really didn’t do much for me. I am thinking I will try the domeboro next. One thing I did learn was that I had to be careful what I used to mop up the ooze! Tissues were a big no for me they made it SO much worse!!! I actually found paper towels were a better solution.

Anyway I’ll let the photos do the telling..

My arm had this crazy ass flare that was so annoying. This was probably taken like 2 months ago. It was crazy weeping and it took a long time for it to scab over like this. I really had a lot of trouble with it. It was incredibly itchy!


This is my arm now. It has kinda started to clear up and is a lot more manageable.


My other arm is not doing too bad but the wrist has this bad patch. I have to be so careful otherwise it will split and bleed but at least it is my left arm.



My legs haven’t changed much since going through the flare. Still slowly recovering.



That itchy flaky skin extends a little past my ankle.


My belly too…


Okay now for the scary photos… are you ready? Haha This was the beginning of the flare. That nasty cut was so sore and then the skin started to weep a little…



Then this happened…






I don’t think there is anything that could have prepared me for it. It was constant pain and bleeding and weeping. I would actually wake up and have dried ooze everywhere on my face and in my ear. My neck had a massive split in it that made moving painful. Holy shit I really hope this is my last major flare. This round really tested my mental strength. After a year of this I feel more worn down than I ever did.

These are more recent photos. While I am nowhere near healed, I am getting slightly better. However I do have to prepare myself as best as I can because TSW is very much a 2 steps forward 1 step back process. That’s important to not forget otherwise you will just spiral into depression.




Luckily my eyelids are doing hella good! I was really worried about them for a period of time. Ears are still affected but only the front. The first flare it was the back too and that was so uncomfortable when I was trying to get some sleep.

Some good news to note is that TSW is finally finally getting some more awareness! I was reading somewhere that it has been recognised by some Eczema Associations. (I can’t remember which one) Plus a few stories in the news too! I’m so excited to see it gaining more attention. It can only mean good things.

That’s me for now. Hang in there, all you out there. Stay strong and don’t give up. You are not alone. X


Day 41

1 Month and 13 days in!

Have been getting steadily worse. Everyday I think “This is the shittiest condition my skin has ever been in” but then the next day rolls around and I realise yesterday was a good day.

Getting sleep has been hell! I don’t think I have slept more than 3 hours at a time. Trying to keep a regular sleeping pattern is proving to be very difficult but I’m trying. Sometimes I have been in so much discomfort that I snooze sitting upright in my bed. That’s always fun. i don’t know what’s worse! The pain, the itch, the ooze or the flaking.

In the past week I have really dreaded taking showers. I have to spend 10 minutes just working myself up to get in!!! The burning I get makes me feel like I’m getting stabbed with needles sometimes! Everyday is a battle.

My face on a good day! Peeling like crazy.


Last week my whole neck was covered with the scabs but most have flaked away. It’s basically dried ooze. You can see the ‘red sleeve’ is not so red anymore on my arm. Still a sleeve though!


My wrists itch like crazy! I hope hope hope it doesn’t spread to my fingers!


These patches are so painful!!! Have to be careful when I’m moving around so I don’t split them open by stretching too much. I have quite a few of these! They stick around for a few days and then peel off to reveal that pink, thin and super smooth skin underneath.


It really is a 2 step forward, 1 step back process. Frustrating as hell and I’m just trying to take things one step at a time at this point.

We all have to remember that every day is a day closer to healing.